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If you are new to this website, you may want to go to “What’s Wrong with Bella” at the top of this page for a summary and context.

Dr. Adam in Houston is not so certain that the mass has stopped growing. It’s not that easy to measure this thing because it’s 3 dimensional and the sonogram only shows 1 dimensional. It shifts and moves around in Bella’s chest. So, according to what she has observed, she does not notice that it is looking smaller (as it should be because Bella is growing). The good news is that it is not causing hydrops as of now. If it continues to grow, there is a higher likelihood that it will cause problems. So, obviously, we need you folks to continue praying for the mass to stop growing as you did before.

Also, we are not certain of Bella’s due date. An important measurement was not taken during the early sonogram, so it makes her gestational age uncertain for now. This is good news and bad news. The good side is that she may not be experiencing growth restriction like we have been thinking. The bad side of it is that if she is younger than we thought, she is still in the danger zone of the typical growth period for the mass. So all this is to say, please continue to pray that this mass would stop growing to keep her out of danger.

I have been put on bed rest for a different reason now. Before, it was to help Bella grow. Now, the doctor is concerned about these contractions that I’m having frequently. She said that it is probably due to the high volume of amniotic fluid that I have. This may be because Bella is having trouble swallowing the amniotic fluid because this large mass is pressing against her esophagus and stomach. If the mass stops growing and she keeps growing, then she will outpace the mass and that’s the best case scenario. Actually the best case scenario is that this mass would shrink. They shrink in about 10-20% of the cases. Sometimes the doctor can’t even find them on the sonogram later in the pregnancy.

I have a sonogram again on Tuesday here in Dallas. If there are no signs of hydrops while being monitored here in Dallas, I do not go back to Houston until the end of next week. So, we are grateful for one more day without hydrops. God has provided for our every need throughout this difficult time and He continues to do so. He has given us enough grace for each day.

Please continue praying for God to spare this little life so that she can come and grow up in our family. God will be glorified in whatever the circumstances.

If you are new to this website, you may want to go to “What’s Wrong with Bella” at the top of this page for a summary and context.

(update since this was written: went late wednesday afternoon for a sono, and no sign of hydrops!! Bella was wiggling around so much they could hardly do the sono… the doctor said this is a happy baby and she would not be wiggling and moving around so much if she did not feel good… another good day to thank the Lord for) 

There is nothing “routine” about these sonograms. They are quite stressful. We ask that you pray for us tomorrow as we go for yet another sonogram at the medical university here in Dallas. We are asking for the continued prayers that you have all been praying with us… no hydrops, physical growth, the hole in her heart to close, for the amniotic fluid to not be too high. Let you know how it goes. Especially pray for me (Christy), because I tend to get quite anxious before these tests. Please remember to pray for energy, patience and stamina for Patrick since he is taking up all the slack since I’m on bedrest now. He’s doing a fabulous job!!

And a special thank you to all of those who have brought meals to us during my bedrest, it’s helped more than you can imagine. Our new chef, Patrick, really appreciates it!

If everything goes well and there are no changes and no sign of hydrops, then we will not go back to Houston until next week.

Christy and I will likely drive to Houston this evening in preparation for an early morning analysis Friday at Texas Children’s Hospital’s Fetal Care Center.  Christy spoke with the lead physician of the facility yesterday.  They’ll do a number of scans that can’t be done here in Dallas.  To all who have already sent encouragements and prayers, we thank you.

We are so thankful for your prayers. . .

- That she'd be weaned from the ventilator soon, and fatten up for the surgery on her VSD

- For Bella's mommy and daddy and all their anxieties arising from all the unknowns related to her condition and long-term prognosis

- for wisdom for the doctors and us about when to schedule the c-section; her gestational age being in question makes it tricky since she needs to be in Mommy as long as possible... but leaving her in too long can be risky with all the amniotic fluid ANSWERED.

- that the mass would STOP growing ANSWERED.

-that the mass would shrink ANSWERED.

- that the pockets of fluid (hydrops) that put strain on the heart would not form ANSWERED.

- that a spot would open up for us and the kids at Ronald McDonald house (we are on the waiting list) or lodging of another sort would be found in Houston ANSWERED.

-that she would continue to grow physically, and outgrow the mass ANSWERED

- that surgery in-utero would not be called for to save Bella's life ANSWERED.

-that the hole in her heart would close while still in the womb

-that her stomach would grow adequately to accommodate the flow of fluid through her system so as to not cause a backup of amniotic fluid ANSWERED.

-that our hearts would be resolved with whatever God chooses for Bella

-that she would remain safely inside of Mommy until full term so her lungs and heart can develop ANSWERED.

-that the amniotic fluid would not get too high (this could trigger pre-term labor) ANSWERED.

-please go this link to meet our doctors and see a video of this surgery click here

-we plead with you as you pray for our little girl, that you would send this website to all you know who pray... we are asking because we need people praying her safely in from all over the country and even the world. (see under prayers and postcards)

keep in touch

email us if you'd like to receive updates and prayer requests for Bella

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