1 Corinthians 15:53 For this perishable body must put on the imperishable, and this mortal body must put on immortality. 54 When the perishable puts on the imperishable, and the mortal puts on immortality, then shall come to pass the saying that is written: “Death is swallowed up in victory.” 55 “O death, where is your victory? O death, where is your sting?”
I had to look up words like macabre and morbid again to see if giving you small glimpses into Bella’s final moments with us fell into either of those categories. Macabre is defined by
1.gruesome and horrifying; ghastly; horrible, and 2.of, pertaining to, dealing with, or representing death, esp. its grimmer or uglier aspect.
Morbid shares some of those same connotations. These few pictures we’d like to share with you do represent her death, but as to whether they picture something grim, gruesome, ugly, or ghastly, we’ve concluded they certainly do not. Unlike the Gnostics of centuries past, or even those since who see the body as of lesser value than the soul, we believe firmly in the sanctity of the body, the intrinsic dignity it possesses by virtue of its origin in the mind and will of God. We cherish what is of flesh for obvious reasons: it was God who made this flesh; it was God who came in the flesh; and it will be God who resurrects our decayed flesh when He comes again. So whether this flesh is approaching death or has crossed over into death, that flesh is still of such import, magnificence, and beauty that to conceal it entirely from those of you who’ve come to love our Bella, though you have never seen her apart from her shadowy, in-utero images, seems a kind of deprivation—a diminishment of this particular body’s wondrousness.
They are some of the most intimate pictures we can imagine and that is why we feel it necessary to preface them with words of introduction and context. They include our holding her when the attempt to wean her from the ventilator had failed and we began to come to terms with the fact that she would not endure much longer; when we baptized her in the NICU; when our whole family said their earliest goodbyes to her; and when we had to say some of our final goodbyes. Her body was flawed and frail—as all our bodies are to a greater or lesser degree—but it was and is beautiful to us. We suspect that you will find her as beautiful as we have. Unlike other displays of the body that try to take a whimsical, and thus a de-contextualized look at death (remember the traveling exhibition of Bodyworks?), these images are as much in context as they can be. They conceal neither our sadness at her departure nor our thanksgiving at having had the time with her that we did. They reveal the frustration to which our bodies have been subjected and the majesty with which they’ve been endowed and still retain. They are a visual lament and celebration of this body.
There is a song we’d heard in concert last month from one folksinger we’ve mentioned before in these pages: David Wilcox. Hearing this song again, now having had to realize that Bella could not stay with us–well when you read and hear these lyrics, you may think, as we have, that they were crafted for Bella. In point of fact, David Wilcox wrote this song about hope. He just didn’t know it was about our Hope, our Isabella Hope.
The night I saw her dancing
She moved in liquid music
Like every song that moved us
Was the music of her soul
And waking up at sunrise
With the sunlight through her window
I pulled aside the curtain
Far away from home
When she danced
She knew the music
Like the waving of a wheat field
Gives the hidden wind away
So I’m so grateful for her beauty
And I knew she could not stay
Just the fragrance of her memory
In the satin and the velvet
Time split through a prism
And I knew that she was gone
But I found the note she’d written
If my heart could dare to trust her
Through the journey in the darkness
She’d be with me in the dawn
When she danced
The music knew her
Like the instruments were listening
To the motion that she played
I’m so grateful for her beauty
And I knew she could not stay
So I stepped out on the sidewalk
And I closed the door behind me
Following a fragrance
That was carried on the wind
And I knew I’d never reach her
‘Cause the starlight was the distance
But I knew that right beside me
Was where she’d always been
Now when we dance
She moves right through me
I know love is coming to me
From the promise that she gave
So I’m so grateful for her beauty
‘Cause it made my heart so brave










21 comments
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January 5, 2008 at 9:44 pm
Jennie Loftis
No doubt she was appropriately named. I say that with all sincerity and a full heart. She was beautiful. I truly look forward to meeting my little sister in the presence of the Lord. I love her and miss her even though I have yet to meet her.
I pray for both of you several times a day every day and will continue to do so.
Love you. Jennie
January 5, 2008 at 10:47 pm
Susan Breeding
Thank you for sharing these precious, initimate pictures. My heart is full thinking about the valley you have been through, and yet with thankful hearts. May God continue to fill you with comfort and joy.
In His love,
A PCPC member transplanted to Georgia
January 6, 2008 at 9:28 am
Jean and Calvin Osteen
Undoudtedly she is a gift from God. A beautiful little angel that I know brought you trememdous joy for the time that you had her.
You and your family are still inour prayers.
Calvin and Jean Osteen
January 6, 2008 at 9:38 pm
Julie Hickman
Thank you for allowing us all to see Bella. I sense that making the decision to share these photos was not easy in regards to the way in which they should be presented. However, you so elloquently expressed your purpose and I respect, honor, and thank you for that. Truly, the Lord is glorified by your photos and your words.
What a precious face she has! A Lafferty through and through. But more importantly a daughter of the King. I am thankful that our time with her before the Lord, Himself, will extend throughout eternity, for that is how long I could enjoy taking in her sweet and peaceful face.
I believe that you are wise to have taken such priceless photos and to be making a written journal in this way through this blog. It is brave of you to give yourself this gift of remembering her in these ways. So many do not want to remember such difficult and painful moments. But in truly looking at her and your time with her, even while still in the womb, you will always remember what the Lord did in those days…you bring Him honor by remembering her life. Although they bring tears now for your family and all those who grieve with you, these pictures (and this blog) will be cherished always. They are your rememberances of Bella. They are a way for you to honor her life, just as you have in sharing all of this – both pictures and words, with us. Truly, they are beautiful. It is very clear to me, by who you are as a couple and family, that from the day of her conception you became a family of 5 and you always will be because you will always carry her in your hearts. And, we continue to carry all of you in ours.
Love to you,
Julie (for all the Hickmans)
January 6, 2008 at 9:42 pm
Danny & Emily
Bella is such a beautiful child. Our prayers go with you even today as we read and pray through your post. This child is resting in the arms of the savior and many are seeing His beauty through this. Bella is truly having an impact on the kingdom still to this day.
January 7, 2008 at 11:35 am
Scott & Bonnie
So beautiful… she looks like a Lafferty. We’re grieving and rejoicing with you – in what we know is a tiny fraction of what you are going through. Our prayers have not stopped, and neither has our Lord in working. We love you and will not tire of being on our knees on your behalf.
Thank you for sharing God’s beautiful creation with us. Even if it is out of the context in which He intended life, it is still beauty as only He could create.
January 8, 2008 at 7:50 am
Todd & Nettie Groat
Thanks for sharing these pictures with us. It will be good to meet her in heaven someday and to see her healthy and whole. She celebrated Christmas in a way that we can only imagine.
Blessings on you all.
Todd
January 8, 2008 at 3:24 pm
Brad &
My heart breaks for you as I sit here reading about beautiful Bella Hope. I can only say that I understand the intense pain that you feel, and want to open our arms to you in your times of need. Thank you so much for sharing this beautiful angel with us. I mourn her loss but thank God for the chance He gave you to have her with you. I am so deeply saddened for your loss. Please contact us if you need to tadharding@hotmail.com. Jill and Jim Hamilton shared with you about our loss, so please again, contact us if you need to just talk, or even if you need to wail and let it out.
Prayerfully,
Tanya
January 8, 2008 at 8:07 pm
Jill and Jim Hamilton
The above comment is from my sister in law. You met Brad and Tanya at the Ronald Mc Donald House in Houston with us. I decided to check and see what ended up happening with your baby, and my heart broke to discover it. I wept today upon looking at your website, and I passed it along to B and T, who lost their baby as well. This kind of grief is just unbelievable. Bella was the most beautiful angel. She looks like a porcelain doll in the pictures. Wow. I am so sorry for the pain you are experiencing, but so thankful you know the Savior. I know He is completely glorifying Himself through this as onlookers watch you grieve with hope and joy and worship the One who gives and takes away. Please let uw know if we can do anything besides pray.
Love,
Jill
January 9, 2008 at 8:36 am
Warren and Tonya
Dear Christy and Patrick,
Words simply can not express how sorry I am for your loss. We love you guys very much and continue daily to pray for all of you. I know that God is in control even though we don’t always understand His purpose. I am praying that God will give you a peace that passes all understanding. Your mom told us how sweet the funeral was and that y’all did such a great job. I really wanted to come but finances and timeing would not allow it. Please know that we love you and that we are praying for you every day. If there is anything we can do please let us know!
Love,
Warren, Tonya, Meredyth and MacKenzie
January 9, 2008 at 9:39 am
Brooke & Kris
Christy and Patrick:
We are so very sorry for your loss. Our hearts just break, she is so beautiful! Thank you so much for sharing your hearts and these precious pictures. I can’t begin to imagine your pain and grief but am thankful that you know the Savior who comforts all. Your sweet family is such an inspiration and testimony to us all. Bella has touched and will continue to touch many hearts and lives. Please know that you are in our thoughts and prayers. I wished so much that I could come to Dallas and be with you all on that day. We love you all and you will continue to be in our hearts and thoughts and prayers!
Love,
Kris and Brooke
January 9, 2008 at 4:50 pm
Roger Russell
Christy and Patrick,
My heart sank as I read your most recent news, concerning the passing of Bella. I pray God continues to bless you with the same comfort and peace given to me upon the loss of my mother 19 years ago when I was a senior in high school. Feast on the abundant grace God is generously providing for you at this season of your life. You are in my prayers.
In His Love,
Roger Russell
January 10, 2008 at 7:59 pm
sethandkristen
Patrick and Christy,
Seth and I continue to think about you and pray for you. I find myself coming back to your blog to look at your beautiful pictures as I try to make sense of it all. She is precious, without a blemish. Thank you for sharing your pictures. As I have prayed for Bella since the day Seth received an excited email from Patrick telling us that you were shocked and thrilled to be expecting I feel so attached to her. My heart aches for you. You were such amazing parents to Bella every single step of the way. God entrusted her to you for a time and you lavished her with your love. Your fears and concerns did not hinder your love and your ability to be amazing parents. What an example you all have been to us in so many ways. Your hearts must feel raw after such loss and such vulnerability. I am praying for continued strength and renewal.
love, Kristen
January 12, 2008 at 11:41 am
Brenda Hudson
Oh, Dear Ones,
These pictures portray the beauty of the Lord! Thank you for sharing a glimpse, so full, of this precious and tender place.
We have come nearer to our Lord through loving and grieving Bella.
Thank you for loving us by sharing these.
Hugs, big hugs, to each of you,
Don and Brenda
January 13, 2008 at 11:03 pm
Greg & Amy Linton
Patrick and Christy-
O how our hearts ache for you!! Amy and I were extremely saddened to hear of precious little Bella’s death. Sam, Will, Amy and I have been praying for little Bella for weeks now…and now we look forward to meeting her one day when we all go to be with the Lord. Thank you for taking the time to post your comments on this website so we can share in what the Lord has done.
Grace and peace-
Greg & Amy Linton
January 30, 2008 at 6:48 pm
Rebecca
Your baby is beautiful! I found you today through Tristan Hostetter’s blog.
I am so sorry for your loss.
Rebecca
February 3, 2008 at 8:45 pm
Fern
She is gorgeous. I’m so sorry for your loss, and so happy you will see her again.
February 4, 2008 at 2:53 pm
Alyce Caulder
My classes and I from Byrnes High School sent the handmade cards for Bella. The kids asked regularly how things were going. Tomorrow I must tell them about her going ahead.
What a perfect little face and how she was loved. God does not make mistakes and since we have suffered a close family member with a Trisomy 18 child, we can empathize with you even as we rejoice in Bella’s perfection now that she is healed and with God.
Our thoughts and prayers continue to go out to your sweet family. Seamus is adorable, as are his sisters. I heard when I lost my husband a couple of months back this phrase and it has stuck with me, so I share it with you. “God does not take, He receives.” And so He received Bella back to His own Grace. Bless you, Alyce
February 12, 2008 at 11:28 am
Rick McDuffie
Christy and Patrick,
Dorothy just told me about this via email, and I had a look at this page. We are so sorry to hear about this, but SO grateful that 1) you are people of faith and 2) that Bella was so loved during her brief time here. The photos of Bella are beautiful. What a great name!
All of you are beautiful.
May the grace of God sustain you. You are loved by the McDuffies.
Rick
April 9, 2008 at 11:21 am
Lee Ann
I found your blog today, and felt so many emotions as I read through your story about Bella. This summer we lost our son Nathaniel, due to a fatal genetic problem called Triploidy.
I am so sorry that you no longer have your Bella with you. I pray that the Lord will sustain you.
October 22, 2008 at 1:20 pm
zoe
this is by far the pretiest picture i have ever seen of anyone